Day 18 since infection

It’s now been 18 days since Mia contracted the virus, the first few days she seemed fine but then she started with D&V and rapidly went down hill. Jo took Mia to the Doctor who sent them straight to Stepping Hill Hospital. After a night in Stepping Hill Hospital Mia had been closely monitored and put on several machines the decision was made to transfer her to the specialist unit at Manchester Children’s hospital. The transfer was done by ambulance under blue light conditions to get her there as quickly as possible, when we arrived Mia was taken into isolation until the Doctors could work out what was wrong.

After many blood tests and much discomfort to Mia she was diagnosed with a rare type of E-coli, hemolytic uremic syndrome (HUS). Signs of HUS include decreased urination, a pale or swollen appearance, unexplained bruises, bleeding from the nose or gums, fatigue, and seizures. HUS can be life threatening and requires treatment in a hospital.

Mia was the quickly taken in for surgery to have her prepared for the machine that would keep her alive until her kidneys start to work again.

Mia has been on 24hr dialysis since arriving at Manchester Children’s Hospital after the virus caused her kidneys to fail, she has had several blood transfusions. and has several other machines to constantly monitor and care for her. The last two days she has been put onto morphine to help with the pain.

It is now 12 days since being admitted to hospital and while we all keep our hopes she will be home soon, the Doctors say it will be a few weeks yet.

All the signs say she is going in the right direction, after a very tough few days on Mia and emotionally on Jo and I we can only hope that the next few days the virus starts to slow down and Mia can fight it off.

We have received massive amounts of support and cant thank people enough.

Mia is very strong, she is very determined in everything she does, she will fight off the virus and be home before we know it.

I will try to keep everyone informed on her progress but forgive me if there are delays in me posting.

 

This is Mia’s painting wall, we intend to fill the wall with paintings before she comes home.

Pete

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